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Posts tagged ‘alcohol’

YES!

I know I have not written much in these last months. It’s definitely not because I don’t have anything to write about. Every day seems like a new adventure to me. Life has not been easy living with a disability, lately. There has been absolutely NO normalcy in any of my days. I am a person with routine. I dont just don’t want it. I really do need it. But it is what it is. I am one to wake up every morning and just say “I think I can. I think I can.”…lol…

To me, life really is fun. I really don’t ever know what it going to come next. I have the best job in the world. I couldnt ask for a better boss and co-workers. I work at a school with kids who have Autism. They are just like me so I can connect with them. I really do understand them. I wake up every morning thankful that I get to go to work every day to a place that feels like my second home. People who have FASD or Autism have a joy about them in their eyes and in the way they live that just is a breath of fresh air. There is always something to look forward to and always hope.

Today, I see a lot of hope…and thankfulness. Those of us on any kind of spectrum have to find ways of communicating. Mine has always been writing or photography. I have been blessed with an eye for lines. I can see the beauty in just about everything…on the side of the road, in a field…even in a swampy area. The broken down buildings, the ones that should be condemned have the most personality. I love the personalities of trees. Each one has their own story. The ones that are dying and or bare…have so much to tell. Every leaf, every branch, every line of their wrinkly bark shows their history.

I love to take my camera and capture life in nature. I call it God’s Thumbprints.Image I have been doing this for awhile, now. It is my way of showing what I see. My way of communicating when the mouth simply doesn’t work. I may not be able to tell you eloquently what I see, but I can sure show you in a photograph. I was given a true blessing. A gallery in a mall wants to house my work. They really want to sell it. I am so thankful!

You see, those of use who live with FASD or Autism really think sometimes…or we are given the message that there is not much out there for us. There is a lot of negative. But we are some of the hardest workers, most passionate, highly creative individuals on this planet. I have had an Etsy Gallery for awhile now. I am so thankful to have the opportunity to display my art…to talk to others and share life with them.

Someone with FASD guys!! I have a full time job at a school and I have a photography business…and I write a little…lol…

We can do it!!

We can be a part of the human race with optimism and postivity! We can make a difference! We can make a living! We can show people our talents, hopes, and dreams and that we are normal people…

I hope you enjoy my gallery...God’s Thumbprints…

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Dear Teacher

Dear Teacher,
I have FASD. I have a hard time hearing everything you say. I try, but sometimes I just don’t understand. It’s hard for me to understand the directions you say. Lot’s of times I forget as soon as you say what I’m supposed to do. I look at others, not cuz I want to cheat, but cuz I want to know what I’m supposed to do next. I know it seems like I’m not paying attention, but I just don’t understand.

I’m not lazy. It seems like I dont want to do my work, but I do. I’m just not sure how to do it. If you tell me exactly what I’m supposed to do a couple of times, I might understand better. You might have to explain it to me with no one else around.

My senses are really sensitive. Sometimes I need breaks from the classroom. Sometimes, I need my own time out from the chaos in the room. It’s hard for me to process all that goes on.

FASD is fetal alcohol syndrome. It just means that my mom drank when I was in her belly. It doesnt mean I’m less than the other kids in the class. I am still very creative and very fun. I love to learn and I love to work. I will always give you my best. I promise and I keep my promises.

FASD means that my brain is not like the other kids. It is wired a little differently and I have to find my way of learning. I have to learn how to learn. Work with me cuz I’m trying to figure out what works for me. If you do it with me and stay patient with me I won’t get as frustrated. Let me know how proud you are of me that I’m working so hard even if I don’t understand and constantly focus on what I’m doing right. Oh, you can tell me what I’m doing wrong or what I’m not understanding, but remind me that I’m still a great kid even if I did something wrong.

See, I’m extra sensitive. My brain just has a hard time understanding so I get so confused with what you are saying or what you are expecting that the harder I try, sometimes my brain just shuts off. And if you get frustrated with me, I think I’m doing something wrong when I’m really trying to give you my best. Do you know what it feels like when people are upset with you and you don’t understand why? You are doing everything you think they want you to do but you are still doing it wrong?

I cry a lot inside. I want to be my best for you and for my parents. I want everyone to be proud of me.

It’s okay to make me an IEP. Call FAS what it is. It only hurts me if you don’t. If I get the right diagnosis, then I get the right helps.

It’s okay that I have this thing called FASD. I can’t change it. It is what it is. Just please don’t make me feel different. Don’t make me feel like what my mom did was so wrong that I feel bad about who I am. Don’t make her actions be who I am.

Thank you,

Your student