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FASD and Autism…

I was recently diagnosed with Autism Spectrum Disorder, too. About 3 weeks ago. I have not said anything, here because I don’t know how I feel. There is one thing to think you have something, but then you are actually diagnosed with it. I went through the same thing when a doctor said I had all the characteristics of someone with FASD. I knew that you could have both. I actually wondered if I did. I have heard that people with FASD can have both. I know both can have a lot of the same traits, but I had a neurologist ask me a bunch of questions and he said not only by my answers, but in observing me, he knew I had Autism. Hmmm. Someone asked me how I felt. I didn’t even answer. I really don’t know how I feel about it. I’m not saying this is bad. I have got to know a lot of neurotypicals in my years and I can honestly say, there is not one I would want to be like…lol. So, I’m okay with being on the spectrum. When i wrote Autism Spectrum Disorder, the word that I kept staring at was Disorder. Really? This is a disorder? I want to look up what that means. Wait a second…okay a medical condition involving a disturbance to the usual functioning of the mind.

Okay. I will let that process.

Who says how we process and what we do is a distrubance. Okay. I get that things are not right. But who says that neurotypical brains are just that…typical?…

Just a question. Image

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I resemble this remark!

LOVE! LOVE! LOVE!! This is perfect!! I cannot tell you how this fits us FASD folks! I could work all day and not be bothered by the talks and gossips of others. I just want to stay focused and do my work. People gossip, which I have never been one to be bothered with gossip. Nor do I think its right. There is so much more positive things to do in the world than talk negatively about others and spread rumors. I know socializing is important…but, I would rather do the work assigned than socialize. I love being productive! In fact, when I’m not, I feel lost, I feel sad, I feel stuck! Just give me something to do and I’ll do it till its done! Temple Grandin is such a great representative of those with neuro disabilities! She has accomplished and overcome so much in her lifetime! I had to post this quote because I sooooo relate to it. I was the photographer for a kid’s cancer camp in July. I worked the entire week and just stay focused. I had objectives. To take pictures and to put them together for the camp and a slideshow for the parents at the end of camp. I probably worked 12 hour days easily for 6 days straight. it was hard for me to take a break. I just wanted to do the task and not be bothered…lol. I’m that way with every job I have. I would just rather work than talk…lol…
FASD individuals can be very productive individuals. The one thing that makes me so upset is the constant negative that is out there! There is soooo much good about us and you would find if we are kept productive, there is less chance of problems. I know for me, I want what everyone else wants. Love, acceptance, and to be a productive, positive citizen. I love helping others. I love connection. Yes I do! I love doing! Not doing is idle time… Just like my blog the other day, having structure with lots to do makes for a healthy, happy Ann.

Structure brings productivity in FASD individuals

I have learned something huge lately, I am no good without structure! I absolutely do amazing if I just have structure. I would work all day on a project and not even want to take a lunch. Lunch to me, is unstructured time. I can eat through lunch, but why stop. When I stop, I feel like I don’t know what to do. You would think eating would be what I do, but I sit there trying to figure out something else to do. I either get on the computer or put a puzzle together. I can’t just sit and watch a T.V. show. I am not good at downtime at all!!! I will work all day until I paint an entire room. I will work until a project is done even if it takes days. I will stop to sleep, etc. but I get right up and busy. I love it!

Structure makes me feel healthy and vibrant and keeps my brain focused. The second I have to come up with something to do. I’m done. Give me a list and I’m great. Tell me to find something to do and I will be the most ADD you will ever see. I will hop from thing to thing to thing and get nothing accomplished. Oh, I will stay busy, but I will forever be lost.

I just started a new job today. I am not good with anything new, but this went well. It actually fit me perfectly! I just did things that were given me and I could do that all day. If my job is to make someone else’s life easier and they just keep giving me lists of things to do–I’m good! I’m great! I thought about just going to a store and stocking shelves all day cuz I know the time would go fast and I would probably be the most focused one there and not even wanting to take a lunch. Organizing and stacking and building something like Lego’s is the kind of busy work that I love. I also love doing things on the computer like blogging.

If I am left to my own, I seriously could tell you I was busy the entire day, but I have no idea what I got done and I leave my day frustrated!

Structure is so important to me living with FASD. I am not lazy! I am not unmotivated! I just dont know what to do when. I have lots of ideas, but I’m not good at executing. BUT tell me exactly what to do–and I’ll work the entire day until its done! AND I’ll be happy! AND I wont be frustrated! AND I won’t get into trouble and look in areas where I could get in trouble…lol.

I seriously could work the entire day and not even feel like it was 12 hours. The time just goes so fast cuz my brain is just so into what I’m doing that I dont even know that several hours went by. Give me those same hours with no structure and with me as the pilot of my day…lol….I’m in trouble!

I guarantee if you give someone with FAS a list of things to do, they will get it done and do their best.

I know there are things on this job I’m going to run into that I don’t know what I’m doing. I said to myself, I might not be able to, but I will do my best and my best is all I can give.

Structure is key to a happy FASD person! AND happy FASD caregivers and external brains!